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Patient lived experience

Why Patient Lived Experience Is the Most Underutilized Dataset in AI Healthcare

We Are Expanding What Counts as Data Artificial intelligence is transforming healthcare in remarkable ways. Today, AI is trained on information such as clinical trials, imaging and diagnostic data, treatment protocols, clinical workflows and population-level outcomes These datasets are essential. They power advances in diagnosis, treatment, and clinical decision-making. But as AI becomes more integrated …

The CARE Model

The CARE Model™: Why AI in Healthcare Must Be Built on Lived Experience, Not Just Data

Introduction: We Don’t Have an Information Problem In this blog, we’ll explore the CARE Model™, a new framework for designing and evaluating AI in healthcare—one that starts not with data, but with lived experience. Healthcare doesn’t suffer from a lack of information. We are surrounded by it, drowning in it—clinical studies, treatment protocols, online resources, …

patient storytelling

Patient Storytelling in Healthcare: Ellyn Winters-Robinson and the Rise of Conversational Care

Healthcare innovation has traditionally focused on breakthroughs in diagnostics, drugs, and medical technology. But a growing movement is highlighting another critical dimension of care: patient storytelling focused on the human experience of illness. Across policy summits, health equity forums, and design conferences, breast cancer survivor and AskEllyn founder Ellyn Winters-Robinson is helping bring that perspective …

breast cancer breakthroughs

We’re Nerding Out on Two New Breast Cancer Breakthroughs

At AskEllyn, we’re always watching for breast cancer breakthroughs and science that matters—especially when it has the potential to meaningfully improve early detection, treatment options, and ultimately outcomes for people living with breast cancer. Right now, two really exciting developments are getting our attention: Let’s break them down—what they show, why they matter, and what …

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